Watching My Best Friend Suffer From Chronic Pain Changed My View on Medicinal Cannabis

Medicinal Cannabis: The Solution for Chronic Pain and Mental Health?

kate and i

“Every day of my life I have to juggle my life around my health. Not knowing if one day I’m going to be dealing with fibromyalgia pain, or searing abdominal pain from endometriosis.

“Every few weeks I suffer intense hormonal fluctuations that can make me go from feeling fine one minute, to literally suicidal the next. More days than not, I struggle to get out of bed, no matter how many hours I’ve slept. I worry sometimes if I’m going to become a statistic but am doing all I can not to be.”

If you’ve ever experienced anxiety or depression, it’s highly likely you know how debilitating mental pain can be. Now imagine adding in a severe and agonising chronic pain disorder that inhibits your ability to work, spend time with friends, or even make yourself a meal — all while knowing that the one thing that could give you quality of life, remains locked up in red-tape.

This is the reality for many Australians, including my friend *Kate, who still cannot gain access to the Government’s medicinal cannabis scheme — despite suffering from a range of severe and incurable chronic illnesses.

For over 15 years I have watched her struggle daily with Endometriosis, Fibromyalgia, Polycystic Ovarian Syndrome and Premenstrual Dysphoric Disorder (I guess you could say she hit the jackpot in terms of agonisingly painful, incurable, debilitating illnesses), and I constantly ask myself: when will our Governments finally provide easy and legal access to the one thing that could dramatically improve the lives of the 1 in 5 Australians who suffer from chronic pain?

Kate and Jas Rawlinson
Kate and Jas Rawlinson in Canada, 2012

I’ll be the first to admit, that in the past I  never would have considered myself a supporter of cannabis use. But when I saw the difference it made to Kate’s life, I knew it was something we had to stop demonising.

A few years ago, Kate began experiencing nausea so severe that she could no longer eat. Sometimes, even just drinking water would be enough to trigger a vomiting or dry reaching spell. She survived on mushed up foods and health shakes, often lugging a plastic bucket from the couch to the bathroom. We would talk online, as she lay on the floor of her house in Canada sobbing because all she wanted to do was eat a plain rice cracker; to eat anything. Doctors were baffled, giving up on her before they’d even tried to investigate; brushing off her symptoms as an eating disorder. I felt so helpless. Would I see my friend again? Was she going to die?

It was during this time, desperate for something that would work, that Kate began vaping medical marijuana, which she obtained from a dispensary (Canada legalised cannabis for medical use in 2001) — and the effects were incredible. Suddenly she could keep small amounts of food down. Suddenly she could get off the couch and get a few things done around the house. She had some quality of life, no matter how small it was.

Access to medical marijuana in Australia remains bound up in red tape for many. Picture: iStock

However, when she returned to Australia, Kate no longer had the option of getting a legal prescription of medicinal cannabis. Instantly, she began regressing. The plane ride home was hell in itself…she threw up over 10 times during the flight. Back home in Australia, she now has to rely on pharmaceutical alternatives that leave her at the mercy of various negative side effects.

As Kate has shared with me, while drugs such as Valium can help calm her down while experiencing a PMDD ‘episode’ — during which time she will be ‘rocking, physically shaking, stuttering, and suffering from suicidal ideation and utter exhaustion’ — the downside is that the drug leaves her even more exhausted, and makes it difficult for her to stay awake. She also worries about the effects that some of the drugs are having on her organs.

“During one of my recent PMDD episodes I took a valium and slept until 1pm. Not exactly helpful,” she shared. “Right now I take Amitriptyline, but I fear being on it long term as there are suggestions it could increase the risk of dementia and heart [issues]. I’m also nervous about upping my doses as one of my friends was on the same medication and it caused substance induced bipolar.

“I just want some hope, to be able to live a happy life; to be a happy mum and partner, you know? I just always worry that I’ll end up a statistic.”

Image may contain: 2 people, including Jazz Rawlinson, people smiling
Jas Rawlinson and Kate in Canada, 2012

I first wrote about Kate’s journey back in 2015. At the time, medicinal cannabis advocate Lucy Haslam (who lost her son Dan to terminal cancer in 2015 and went on to found the organisation ‘United in Compassion’) was making headway with Government support for the use of cannabis with terminally ill Australians. Speaking with Ms. Haslam in 2015, she explained that her hope was to ‘get to the situation where people don’t have to rely on the black market anymore.’ I remember my friend optimistically hoping that legalisation would also trickle down to those with incurable pain disorders, like herself.

Fast forward 3 years, and the system remains so flawed that even terminally ill patients struggle to easily access the Government’s medical cannabis scheme. It begs the question, if Government is moving so slowly that those who are dying are still relying on the black market, what hope do Australians such as Kate have?

Dan Haslam
Dan Haslam prior to losing his battle with terminal cancer in 2015. Pic: Supplied

While my friend is lucky to have a supportive doctor who could try to have her accepted for medicinal cannabis, she says that the cost is simply too high — especially for those like herself who cannot work consistent, full time hours.

“I am already spending hundreds of dollars a month on my current treatments…I constantly feel guilty about how much I have to spend [to function]. I haven’t gone clothes shopping for myself in at least a year because I feel too much is spent on my health.”

“I have a friend who works in elderly and disability care whose clients are still using it black market, because they prefer it to the other drugs on offer,” she revealed. “One of her clients with Epilepsy was going to be faced with spending $100 a day for the amount needed to treat her!

“The Government keep putting on this big front about how they are making it accessible for the sick, whilst in reality it’s not like that at all.”

Ms. Haslam agrees, saying the Government’s scheme has been ‘set up to fail,’ and likening it to ‘a slow train wreck.’

“Kate’s scenario is very, very common,” says Ms. Haslam. “There’s so much focus on mental health in Australia, yet these policies are causing immense mental health issues for those who are already significantly burdened.”

“There’s definitely a compassion deficit in Australian politics. I think the Australian population would be very angry if they found out how bad things are for patients.”

As an example of the many forms of ‘torture’ being dealt out to those who are already suffering, Lucy shared with me the story of an Afghanistan Veteran who had been facing jail for using cannabis to treat his PTSD. After assisting him with his application, which took around 18 months, the Veteran finally had a legal prescription — however, his excitement was dampened when he discovered that there was not a single pharmacy in his area who would dispense medicinal cannabis.

“In the end, he had to drive an 8 hour trip with his young family to get the prescription, and on top of that, had to check in every week with his doctor to make sure he wasn’t ‘abusing’ it,” said Ms. Haslam with palpable frustration. “Then he had to do an application every time he needed a new prescription. The whole process has made his mental health so much worse. Eventually I got legal support for him and he’s now working with a lawyer.”

Dan Haslam and his mother Lucy Haslam, who has since campaigned for the legal use of cannabis for the terminally ill. Picture: Supplied

Ms. Haslam says she and her organisation will not give up on fighting for the human rights of those in pain, and are preparing to ramp up the pressure more than ever, including fighting for those who access the black market due to an inability to access the system legally, to be exempt from prosecution.

“I’ve always tried to be respectful, but now we’re ramping things up; the gloves are coming off,” she said, revealing that she believes there is a ‘conspiracy’ within Government to stop medicinal cannabis access. “There are three courses accredited in Australia on the subject, but even these have come into criticism from certain quarters known to be linked to conventional drug companies which stand to lose money if cannabis takes off as a medicine.’

“Someone is trying really hard to stop this [easy medicinal cannabis access], and while I can only speculate, I would imagine that there’s very high-level agitation from Big Pharma through to the TGA, to stop it.”

Mrs. Haslam also revealed that a number of black market suppliers are soon to be featured in an explosive documentary showing how people from all walks of life, and in a range of professions, are forced into using illicit products.

“Some of the revelations will be pretty controversial, and I can only pray that nothing happens to the insiders who speak out. Things are going to hot up, but it’s time that this was blown open.”  

For Australians in pain, cannabis is not a party drug; it is a natural remedy that allows them some sort of quality of life — and isn’t that a human right? Yes, cannabis should be regulated, grown at the highest quality by professionals, and prescribed responsibly. But every day that passes, is another day too late for those who need relief right now.

I’m not the only Australian with a loved one suffering unnecessary, agonising pain right now. I’m not the only one who wonders how much longer their friend, family member, or partner can keep pushing on.

And the government should know that we, as Australians, deserve better.

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A shortened version of this story was originally published on RendeZview: My Mate’s Pain Changed My Thoughts on Cannabis

 

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